Disability Care Resources

Resources for individuals living with disabilities and the families and caregivers who support them, covering independent living, advocacy, and disability-specific support programs.

Adult Foster Care (AFC) and Structured Family Caregiving

Some states pay a family member a monthly, tax-free stipend to serve as a live-in caregiver for an adult with a disability, under names like Adult Foster Care (AFC), Adult Family Living, or Structured Family Caregiving. Eligibility is tied to the care recipient's Medicaid status, so income limits apply.

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Independent Living Centers: ILRU Directory

Find an Independent Living Center near you, community-based organizations run by and for people with disabilities, offering advocacy, skills training, peer support, and transition services.

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Long-Term Care Ombudsman Program

A free, confidential advocate for residents of nursing homes and assisted living facilities, including younger adults with disabilities who live in these settings. Ombudsmen help residents understand their rights and resolve complaints about quality of care.

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National Council on Disability

An independent federal agency advising the President and Congress on disability policy, providing research, reports, and resources on the rights and needs of people with disabilities.

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National Disability Rights Network

The nation's largest provider of legal advocacy services for people with disabilities. Every state has a federally mandated Protection and Advocacy agency that offers free legal help with rights violations, abuse, and access issues.

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ALS Association

The leading national organization dedicated to the fight against ALS. Offers care and support programs in all 50 states, an ALS Certified Center network, and help navigating insurance denials and appeals.

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American Cancer Society

Support for cancer patients and the families who care for them, including a 24/7 helpline, transportation assistance, lodging near treatment centers, and caregiver guides.

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Autism Speaks

Resources for families of people with autism, including a toolkit for newly diagnosed families, a resource guide by state, and a 24/7 autism response team.

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Autistic Self Advocacy Network

A national organization run by and for autistic people, focused on self-advocacy, public policy, and community resources from the perspective of autistic adults themselves.

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CancerCare

Free professional support services for anyone affected by cancer: counseling, support groups, educational workshops, and financial assistance.

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Epilepsy Foundation

Support and resources for people living with epilepsy and seizure disorders, including a 24/7 helpline, local resource centers, and educational materials for families and caregivers.

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Muscular Dystrophy Association

Care, support, and resources for people living with muscular dystrophy, ALS, and over 300 related neuromuscular conditions, including a nationwide care center network and resource specialists.

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National Association of the Deaf

The oldest and largest civil rights organization for deaf and hard of hearing people in the US, offering advocacy, legal help, and resources on communication access.

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National Federation of the Blind

The largest membership organization of blind people in the US, offering advocacy, support, training resources, and local chapters for people who are blind or losing vision.

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National Multiple Sclerosis Society

Resources for people living with MS and their caregivers, including care guides, local programs, financial assistance, and a 24/7 MS Navigator program.

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The Arc

The largest national community-based organization advocating for and serving people with intellectual and developmental disabilities and their families. Local chapters across the US.

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United Cerebral Palsy

A network of organizations providing services and support for people with cerebral palsy and other disabilities, including life skills, independent living, and family support programs.

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Individual Care Elder Care Caregiver Hub Family & Financial Benefits & Support